The Neuro-QOL of NINDS's

Neuro-QOL is a multi-site NINDS funded project that aims to develop a clinically relevant and psychometrically robust health-related quality of life (HRQL) assessment tool for adults and children.

Since many of the traditional clinical or functional measures of disease status do not adequately represent the full scope of the impact on an individual of chronic neurological disorders and their treatments, Neuro-QOL seeks to incorporate patient reported outcomes of functioning, such as social, psychological, and mental well-being. This project began September 30, 2004 and will be completed in September 2010.

Research Objectives:

The overall objective of this study is to develop a psychometrically sound Health Related Quality of Life (HRQL) measurement tool that is accepted by the neurology clinical trials and clinical research communities.   

Specific goals of the study are:

1. To develop a core set of questions that will address dimensions of HRQL that are universal to patients with chronic neurological disease

2. To develop supplemental questions or modules that address additional HRQL concerns that are specific to particular groups of patients defined by disease, age or other factors.

由BU的教授 Jette, Haley, & Coster 主導，所以也是發展CAT!

the National Institute of Neurological Disorders and Stroke (NINDS) [NIH 的部門] 所推動